Expressive Arts Therapy in Performance as Trauma Work for Individuals with Intellectual Disabilities: A Community Engagement Project

People diagnosed with an intellectual disability (ID) are at a substantially higher risk of experiencing trauma than typically abled individuals. In addition, the nature of ID makes it especially difficult to cope and access treatment. The goal of this research was to examine how expressive arts therapy can support treating this population for trauma. Information was gathered on Trauma-Informed Care, Psychodrama, Drama Therapy, Interactive Behavioral Therapy, Eye Movement Desensitization and Reprocessing, and The Storytelling Method. This investigation led to a community engagement project between August 2019-February 2020 that involved the researcher meeting one-on-one with nine individuals diagnosed with ID. A variety of expressive arts therapy interventions were used to prime their stories for a performance series that would take place at the end of the engagement. Each client had a significant trauma history and the researcher’s goal was to use the expressive arts to cultivate emotional regulation, positive self-concept, and improved self-esteem. Each performer attended sessions regularly and prepared fully realized pieces that were performed to sold-out audiences over the course of three nights. These findings implicate that trauma treatment for this population is crucial and possible through the expressive therapies

Rethinking fast and slow processing in autism

Following the popularity of dual process models in social and cognitive psychology, there is major interest in the possibility that autism is associated with impaired “fast” intuitive thinking but enhanced “slow” or “rational” deliberative thinking. If correct, this has great potential to help understand various strengths and difficulties characteristic of autism. Previous empirical investigations of this phenomenon, however, are marred by concerns about the measurement of intuitive and deliberative processing, as well as broader problems in clinical psychological science (e.g., small underpowered studies, lack of replication). Making a step change, we conducted four large-scale studies to examine dual processing in autism, including a preregistered comparison of 200 autistic and nonautistic adults. Participants completed contemporary cognitive and self-report measures of intuitive and deliberative processing, as well as a psychometrically robust measure of general cognitive ability. Except for lower self-reported intuitive thinking, we found no unique contributions of autism to intuitive or deliberative thinking across all four studies, as evidenced by frequentist and Bayesian analyses. Overall, these studies indicate that intuitive and deliberative thinking is neither enhanced nor particularly impaired in relation to autism. We deliberate on the implications of these findings for theories of autism and future investigation of strengths and difficulties in autistic people

ALISE school library special interest group (sig) session: Crafting resilience in k-12 and beyond

Researchers will share three papers exploring selected School Library topics. This interactive SIG session includes presentation of papers followed by open dialogue and Q&A regarding issues raised by the papers, implications for practice, and future areas for research. The 2021 session will include the following presentations: Preparing School Library Candidates to be Culturally Responsive School Librarians - The 2019 ALA/AASL CAEP School Librarian Preparation Standards emphasize preparing school librarian candidates that “articulate and model cultural competence and respect for inclusiveness, supporting individual and group perspectives” (ALA/AASL, 2019). This research study explores cultural understanding, experiences, and ways of knowing the world from internationally-based school library programs that LIS educators can implement to develop culturally competent learning experiences in the school librarian candidate preparation curriculum. Evidence-Based Practice and School Librarians: Analyses of Practitioners’ Data Collection - School librarian preparation programs are expected to prepare candidates to collect, assess, and apply data. This paper reports the findings of a multi-state study of school librarians’ evidence-collecting practices. Preliminary findings indicate that school librarians collect a wide array of evidence, but the likelihood of collecting specific types of data is influenced by multiple factors including the level of the school, and the librarian’s length of tenure, areas of certification, and placement in multiple schools. Librarians: Bridges to College Readiness - What relationship exists between the presence of a high school librarian and freshmen college students’ academic success? To answer this question, this study examined five years of a large comprehensive university’s first-year students’ data: demographics, first semester GPA, graduating high school demographics, and presence of the high school librarian. The findings are revealing

Self-directed self-management interventions to prevent or address distress in young people with long-term physical conditions: a rapid review.

Background: Comorbid distress in adolescents and young adults with physical long‐ term conditions (LTCs) is common but can be difficult to identify and manage. Self‐ directed self‐management interventions to reduce distress and improve wellbeing may be beneficial. It is unknown, however, which intervention characteristics are successful in supporting young people. This rapid review aimed to identify characteristics of self‐directed self‐management interventions that aimed, in whole or part, to address distress, wellbeing or self‐efficacy in this population. Methods: A systematic search was conducted for relevant controlled studies in six databases. Data on study settings, population, intervention characteristics, outcome measures, process measures and summary effects were extracted. The risk of bias was assessed using the Cochrane Risk of Bias tool v1, and the strength of evidence was rated (informed by Grading of Recommendations, Assessment, Development and Evaluations). Patient and public involvement members supported the review process, including interpretation of results. The rapid review was registered with PROSPERO (ID: CRD42021285867). Results: Fourteen studies were included, all of which were randomised trials. Heterogeneity was identified in the health conditions targeted; type of intervention; outcome measures; duration of intervention and follow‐up. Three had distress, wellbeing or self‐efficacy as their primary outcome. Four modes of delivery were identified across interventions—websites, smartphone applications, text messages and workbooks; and within these, 38 individual components. Six interventions had a significant benefit in mental health, wellbeing or self‐efficacy; however, intervention characteristics were similar for beneficial and non‐beneficial interventions. Conclusions: There is a paucity of interventions directly targeting distress and wellbeing in young people with physical LTCs. In those identified, the heterogeneity of interventions and study design makes it difficult to identify which characteristics result in positive outcomes. We propose the need for high‐quality, evidence‐based self‐management interventions for this population; including (1) more detailed reporting of intervention design, content and delivery; (2) robust process evaluation; (3) a core outcome set for measuring mental health and wellbeing for self‐ management interventions and (4) consistency in follow up periods. Public Contribution: Seven young people with an LTC were involved throughout the rapid review, from the development of the review protocol where they informed the focus and aims, with a central role in the interpretation of findings.peer-reviewe

Healthcare professionals’ priorities for training to identify and manage distress experienced by young people with a stoma due to inflammatory bowel disease: a consensus study using online nominal group technique

Young people with a stoma due to inflammatory bowel disease (IBD) commonly experience distress; however, this is not always well managed in clinical settings. More effective support may/is likely to reduce the possibility of individuals experiencing sustained distress, which may engender depression or anxiety. This study aimed to gain consensus among a multidisciplinary group of healthcare professionals (HCPs) on priorities for training in the identification and management of distress in this population. One of the authors is a young person with a stoma. Design Participants were recruited through Twitter (X) and the researchers’ clinical/research contacts. Two consensus group meetings were conducted using Nominal Group Technique, involving participants generating, discussing and rating on a Likert scale, topics for inclusion in an HCP training package. Setting Online video conferencing. Participants were located across England, with one based in the USA. Participants Nineteen HCPs participated: three general practitioners, three stoma nurses, two IBD nurses, nine clinical psychologists and two gastroenterologists. Results Twenty-five topics were generated by participants; 19 reached consensus of ≥80%, that is, a mean of ≥5.6 on a 7-point Likert scale. These included: recognising and validating different levels of, and variation in, distress; tackling stigma and normalising having a stoma; everyday practicalities of stoma management, including food and sleep; opening and holding conversations about stoma-related distress; considering the impact of different cultural beliefs on adaptation after stoma surgery; training in simple techniques for gauging the patient’s distress during clinical encounters; having conversations about body image; and myth-busting common fears, such as odour. Conclusions This study is the first to identify HCP training priorities for managing stoma-related distress in young people. Consensus was reached for 19 topics, reflecting the varied needs of young people with a stoma. Findings will inform development of a training package for HCPs treating young people with IBD and a stoma.peer-reviewe

Recommendations for designing genetic test reports to be understood by patients and non-specialists.

Funder: David and Claudia Harding FoundationPatients and non-specialist healthcare professionals are increasingly expected to understand and interpret the results of genetic or genomic testing. These results are currently reported using a variety of templates, containing different amounts, levels, and layouts of information. We set out to establish a set of recommendations for communicating genetic test results to non-expert readers. We employed a qualitative-descriptive study design with user-centred design principles, including a mixture of in-person semi-structured interviews and online questionnaires with patients, healthcare professionals and the general public. The resulting recommendations and example template include providing at-a-glance comprehension of what the test results mean for the patient; suggested next steps; and details of further information and support. Separation and inclusion of technical methodological details enhances non-specialists' understanding, while retaining important information for specialists and the patients' records. The recommendations address the high-level needs of patients and their non-specialist clinicians when receiving genetic test results. These recommendations provide a solid foundation for the major content and structure of reports, and we recommend further engagement with patients and clinicians to tailor reports to specific types of test and results

KOI 1224, a Fourth Bloated Hot White Dwarf Companion Found With Kepler

We present an analysis and interpretation of the Kepler binary system KOI 1224. This is the fourth binary found with Kepler that consists of a thermally bloated, hot white dwarf in a close orbit with a more or less normal star of spectral class A or F. As we show, KOI 1224 contains a white dwarf with Teff = 14400 +/- 1100 K, mass = 0.20 +/- 0.02 Msun, and radius = 0.103 +/- 0.004 Rsun, and an F-star companion of mass = 1.59 +/- 0.07 Msun that is somewhat beyond its terminal-age main sequence. The orbital period is quite short at 2.69802 days. The ingredients that are used in the analysis are the Kepler binary light curve, including the detection of the Doppler boosting effect; the NUV and FUV fluxes from the Galex images of this object; an estimate of the spectral type of the F-star companion; and evolutionary models of the companion designed to match its effective temperature and mean density. The light curve is modelled with a new code named Icarus which we describe in detail. Its features include the full treatment of orbital phase-resolved spectroscopy, Doppler boosting, irradiation effects and transits/eclipses, which are particularly suited to irradiated eclipsing binaries. We interpret the KOI 1224 system in terms of its likely evolutionary history. We infer that this type of system, containing a bloated hot white dwarf, is the direct descendant of an Algol-type binary. In spite of this basic understanding of the origin of KOI 1224, we discuss a number of problems associated with producing this type of system with this short of an short orbital period.Comment: 14 pages, 8 figures, 2 tables, submitted to Ap

Healthcare professionals’ priorities for training to identify and manage distress experienced by young people with a stoma due to inflammatory bowel disease: a consensus study using online nominal group technique

Young people with a stoma due to inflammatory bowel disease (IBD) commonly experience distress; however, this is not always well managed in clinical settings. More effective support may/is likely to reduce the possibility of individuals experiencing sustained distress, which may engender depression or anxiety. This study aimed to gain consensus among a multidisciplinary group of healthcare professionals (HCPs) on priorities for training in the identification and management of distress in this population. One of the authors is a young person with a stoma. Design Participants were recruited through Twitter (X) and the researchers’ clinical/research contacts. Two consensus group meetings were conducted using Nominal Group Technique, involving participants generating, discussing and rating on a Likert scale, topics for inclusion in an HCP training package. Setting Online video conferencing. Participants were located across England, with one based in the USA. Participants Nineteen HCPs participated: three general practitioners, three stoma nurses, two IBD nurses, nine clinical psychologists and two gastroenterologists. Results Twenty-five topics were generated by participants; 19 reached consensus of ≥80%, that is, a mean of ≥5.6 on a 7-point Likert scale. These included: recognising and validating different levels of, and variation in, distress; tackling stigma and normalising having a stoma; everyday practicalities of stoma management, including food and sleep; opening and holding conversations about stoma-related distress; considering the impact of different cultural beliefs on adaptation after stoma surgery; training in simple techniques for gauging the patient’s distress during clinical encounters; having conversations about body image; and myth-busting common fears, such as odour. Conclusions This study is the first to identify HCP training priorities for managing stoma-related distress in young people. Consensus was reached for 19 topics, reflecting the varied needs of young people with a stoma. Findings will inform development of a training package for HCPs treating young people with IBD and a stoma.peer-reviewe

The Intersection of Information Ethics and Policy: Challenges and Opportunities for LIS Educators

The purpose of this session is to 1) present actual strategies and/or resources for addressing ethics and policy in LIS courses, and 2) engage the audience in discussions about the implications of ethics and policy in LIS instruction and research. The presentations in this peerreviewed panel will present diverse perspectives on the nature of information ethics and policy, and the relationship between them. These presentations highlight the role of ethics in policy, including real world examples highly relevant to LIS education and research. They include: • Lucy Santos Green and Melissa Johnston will present Educating Future LIS Scholars and Professionals on Ethical Publishing Policy for Scholarly Research. • A.J. Million and Johanna Bleckman will present Research Data Management and Street Level Bureaucracy. • Lesley Farmer will present Taking Ethical Responsibility for Addressing Fake News. • Michele Villagran and Suliman Hawamdeh will present Information Ethics from a Multicultural Perspective: Content Analysis of Library and Information Science Publications. • Dian Walster will present Using Student Created Scenarios to Teach Professional Ethics. The panel will begin with a brief introduction on the topic (5 minutes), followed by five 15 minute presentations (75 minutes). Panelists will conclude the session with a discussion related to the implications for LIS instruction and research (10 minutes)

Understanding social care need through primary care big data: a rapid scoping review

Background A more comprehensive understanding and measurement of adult social care need could contribute to efforts to develop more effective, holistic personalised care, particularly for those with Multiple Long Term Conditions. Progress in this area faces the challenge of a lack of clarity in the literature relating to how social care need is assessed and coded within variables included in primary care databases.Aim To explore how social care need is assessed and coded within variables included in primary care databases.Design & setting An exploratory rapid scoping review of peer-reviewed articles and grey literature.Method Articles were screened and extracted onto a charting sheet and findings were summarised descriptively. Articles were included if published in English, related to primary care and social care using data from national primary care databases.Results The search yielded 4,010 articles. Twenty-seven were included. Six articles used the term ‘social care need’, although related terminology was identified including ‘need factors’, ‘social support’ and ‘social care support’. Articles mainly focused on specific components of social care need, including levels of social care usage/service utilisation and costs incurred to social care, primary care and other providers in addressing needs. A limited range of database variables were found measuring social care need.Conclusion Further research is needed on how social care need has been defined in a UK context and captured in primary care big databases. There is potential scope to broaden the definition of social care need, which captures social service needs and wider social needs